May 6, 2004

Designer Babies:
Parental Love and the Bioethics of Genetic Selection


A Chicago genetics lab has helped five families produce 'designer babies" who are able to donate life-saving tissue to siblings with life-threatening diseases. The babies' umbilical cord blood contained perfectly matched stem cells which can be transplanted into their sick brother or sister.

The Chicago Sun Times reports that one sibling with anemia has undergone a successful stem cell transplant, and a second sibling with anemia will soon be ready for the procedure. Three other siblings have leukemia, which is currently in remission. Stem cells from cord blood were frozen in the event a sibling's cancer rebounds and a stem cell transplant becomes necessary.

Numerous ethical issues are at stake, including the process by which the designer children are produced. According to Daniel McConchie:

The experimenters took nine couples, created 199 embryos by IVF, found that 45 embryos were a suitable match for a potential stem cell transplant using either umbilical cord blood or bone marrow, 28 were implanted and five born alive. The five were born as a result of preimplantation genetic matching while the others were either discarded, frozen, or didn't make it. (Y. Verlinsky et al., "Preimplantation HLA Testing," JAMA, May 5, 2004, pp. 2079-85.)

Destroying embryos in order to accomplish the desired goal is morally problematic, though certainly nothing new. After all, in vitro fertilization clinics have been doing it for decades. The more pressing ethical matter is the idea of creating children for their medical usefulness. Should people have babies for such pragmatic reasons? As McConchie goes on to add,

Many people are bothered today by the idea that a child be born for any reason other than through purely altruistic motives. I am not one of those. If a farmer has another child to help out around the farm, fine. If anything, those children are more wanted than many of the children born today who were never "intended." I've always thought that if God intended reproduction to be purely altruistic, he wouldn't have made sex pleasurable.

That said, I find genetically-based choosing of one embryo over another despicable. Sure, people have a "good end" in mind, but since when did one human life become intrinsically more valuable than another? The idea that one child's life is worth pursuing thanks to her utility to someone else is dehumanizing to both children. The dead one is dehumanized because its life wasn't worth cultivating thanks to being without sufficient capacity to fulfill a particular task. The one who lives is dehumanized precisely because they were chosen over and above their sibling only because they were of use to someone other than themselves.

But is this necessarily the case? I certainly think so but Yury Verlinsk, the director of the genetics lab, doesn’t agree. He notes that, 'the parents already had decided to have another baby. So why not have a baby that could help a sibling?"

Why would it be morally wrong if you are already planning on having another child? If you aren’t creating the child solely to use the baby as a stem cell farm, why not take advantage of this benefit?

The answer, I believe, lies in understanding the idea of parental love.

In his book Faith, Hope, Love, the Thomist philosopher Josef Pieper explores the various meanings and connections between the concepts we use to describe 'love." What, he asks, is the 'recurrent identity underlying the countless forms of love?"

My tentative answer to this question runs as follows: In every conceivable case love signifies much the same as approval. This is first of all to be taken in the literal sense of the word’s root: loving someone or something means finding him or its probes, the Latin word for 'good." It is a way of turning to him or it and saying, 'It’s good that you exist; it’s good that you are in the world!"

Pieper’s answer is a superb explanation of parental love. Our children may frustrate and annoy us, leave us penniless and half-crazed. But every loving parent, when faced with the question, 'If I could do it again, would I still choose to have this child?" always answers with a resounding 'yes." We look upon our child and know in our hearts: It’s good that you exist, that you are in the world.

Parent’s who choose to have a 'designer baby", however, are expressing somthing else, a contingent form of love: 'It’s good that you exist if…" The very process of 'preimplantation genetic diagnosis" makes the parent’s love conditional on the child having a specific property. The choice is not open-ended. All children that do not meet the criteria for a genetic match are simply not chosen. They are discarded, never to exist. In essence, they are being told that since they cannot be of use, it's better that they not exist.

Only those who meet the pragmatic condition of being of benefit to an already born sibling are selected. The "love" is conditional on the baby's usefulness. The parent’s do not say, 'It’s good you exist!" but rather 'It’s good you exist because you can fulfill a utilitarian purpose."

In choosing to implant a designer embryo the parents are saying that it's not enough for the child to be made imagio dei, in the image of God; they must also be made in the image of their sibling. The motives are honorable but the cause is not just. A child should be loved in the way that God intended parental love to be given, the way he gives it to us -- unconditionally.


comments
Marty writes:

1

Very interesting post. Having recently started the Purpose Driven Life and it's 40 days, which claims "You were made for God's Pleasure", you present a very interesting juxtaposition: "You were made for Mommy and Daddy's Pleasure?"

And is a childs "purpose" then complete, after donating the stem cells to his sibling?

Thank God that He can sort all this out, because i sure can't.

posted on 05.06.2004 8:34 AM
Daniel McConchie writes:

2

Joe,

Your post helped me to realize that I should clarify my position on the issue of it being acceptable to have kids without purely altruistic motives to state what I had unconsciously assumed to be obvious--that I don't believe the farmer having the child for purely utilitarian reasons to be in the right. If that were the case, then I would be endorsing a form of child manufacture, which I am not.

So to state my thoughts more clearly, I don't have a problem with people who do not have purely altruistic motives for having kids. But when one does have kids, certain responsibilities are inherent--the dispensation of parental love being among the chief. For most people, the fulfilling of such responsibilies are natural, and people adopting purely utilitarian motives for having children are rare. But when it is done, it is wrong as it dehumanizes the child by removing natural and necessary supports for their existence and development as a free human agent.

Thanks for the insight,
Dan

posted on 05.06.2004 10:54 AM
Steve writes:

3

Murdering human babies problematic? Yes, I would say so. Gen. 9:6

posted on 05.06.2004 11:01 AM
Ray D. writes:

4

Steve

Just out of curiosity, if destroying the "extra" embryo is murder, do you also advocate the death penalty for each member of the conspiracy to create and discard the embryos? If not, why not? If so, do you think this country would be a better one if we killed a few embryo discarding conspiracists?

posted on 05.06.2004 2:32 PM